I'm very grateful to my old friend, Stu
Bykofsky, for the article on my present
condition (see the Daily News article below),
but I feel the need to reiterate that I
am not feeling sorry for myself and am "hanging
in there" for the long haul.
While it's true that I have end-stage renal
failure, I have boundless energy which I
am channeling into my work: specifically,
a book called:
DEAF, DUMB & BLIND: DISABILITIES
IN THE MOVIES
Alcoholism, Deformities, Drug Addiction,
Mental Retardation, Blindness, Deafness,
Physical and Emotional Breakdown, Dyslexia
and everything in between.
For untold thousands of years, mankind
has lived with disabilities, anomalies and
deformities of every imaginable kind, occasionally
embracing and even worshipping them, but
most often shunning them and abandoning
them to the darkness of fear, misunderstanding
and ignorance.
But, from their humble beginnings, the
movies have given a presence, a prominence
and an inner dignity to those who are different
from the rest of us. From The Hunchback
of Notre Dame to The Elephant Man, from
the lepers of Ben Hur to the blindess of
Ray Charles, we have been given the chance
to see the world through other eyes. We
have been given the gift of enlightenment,
education and even, on occasion, inspiration.
From actual issue-oriented films to misguided
tales that used infirmities as the accessories
of evil, it has been a long and bumpy road
from the melodramas of the 20's, 30's and
40's to the political correctness of today
and attitudes about the disabled have fortunately
come a full 180 degrees to the right over
the years. But a retrospective look at the
way they've been portrayed in films has
much to teach us about the disabled among
us and, even more important, about ourselves.
I feel blessed to have been able to get
the word out to help other people and, if
you will just go to: NKFDV.org
(National Kidney Foundation Delaware Valley),
you can find out how to get yourself and
your family screened for kidney disease
FOR FREE. In other words, you don't have
to let yourself develop this dreaded condition,
so please protect yourself and your loved
ones.
So please don't worry about me and, if
you can, take a moment to say a prayer for
those who are going through much worse than
I am. Many of them are alone and frightened,
neither of which I am. I have a loving family
and wonderful friends and a positive attitude
which enables me to smile through the bad
times and hope for better times to come.
- Mr. Movie
* * * * * * * *
Article in Philadelphia Daily News,
August 14, 2006:
For Steve Friedman, movies are
a life-and-death thing
by Stu Bykofsky
MR. MOVIE is dying.
For the past two years, Steve Friedman
- best known as Mr. Movie - has been dying
of kidney failure. If he doesn't get a new
kidney, he will die.
Which reminds him of a funny story.
He was coming out of intensive care, after
one of the serious illnesses - migraines,
high-blood pressure, a stroke - that have
plagued but not embittered him throughout
his life, when a gloomy doctor droned, "You
have end-stage renal failure. That means
you're going to die of kidney failure unless
you get a transplant."
Mr. Movie burst out laughing.
The doctor "turned to Michelle, who was
a wreck," Steve says, and said, "'Doesn't
he understand?' "
Michelle, who is Friedman's wife, replied,
"He's seen 20,000 films in which the doctor
says you're going to die in front of you."
Then they both started to laugh, according
to Steve.
I interrupt this anecdote to report that
Michelle, an art director by trade, doesn't
remember laughing at all.
At the time they had been married 20 years
and had a 12-year-old daughter, Darragh.
"I was horrified," says Michelle, now 54.
"It was devastating to me."
She agrees Steve probably laughed, "but
he was sad, because deep down he didn't
see how he could fit things in."
Things that include teaching at Temple
and Rosemont, hosting his popular Saturday
10 p.m.-1 a.m. movie show on WPHT (1210-AM),
reading and writing about movies. (You can
check his work on MrMovie.com)
Dialysis takes a minimum of 3 ? hours and
he drives into town to have his blood cleansed
of impurities every single Tuesday, Thursday
and Saturday. Mr. Movie doesn't dwell on
the negative, but admits the treatment is
"excruciating."
Hidden under his right shirt sleeve, under
the flesh of his biceps, Mr. Movie has a
fistula, sort of a raised tube of flesh
in which a vein and artery are joined to
facilitate dialysis. His blood flows so
closely to the surface you can feel it with
a light finger's touch.
It's kind of grotesque and cool at the
same time.
In his den, as you might expect, there
are a lot of movie posters, plus DVDs, memorabilia,
general tchochkes and a full-size Robby
the Robot from the 1956 classic "Forbidden
Planet." (Classic to me, anyway, because
of Anne Francis.)
A fountain splashes in the pool outside
his sprawling rancher in a corner of Malvern
that's hard to find even with MapQuest.
Mr. Movie doesn't dwell on death and says
he doesn't fear it.
"I don't feel sorry for myself, I really
don't," says Mr. Movie (the nickname was
hung on him by then-radio host Wally Kennedy).
"Nobody knows how much time they have.
On my show, I always end it by saying go
hug somebody because you never know when
it's going to be too late."
Darragh is "the light of my life" and "I
would love to embarrass myself by trying
to dance at her wedding. I may not."
Given that he is dying, Mr. Movie looks
healthy. He's always been thin as a straw
- 140 pounds on a 6-foot frame - and for
a guy of 59 he still has a bushy hedge of
hair.
Mr. Movie remains upbeat because a lot
of the other dialysis patients he sees three
times a week are much worse off.
They are among the 68,000 Americans literally
dying for a kidney, 4,093 of them in Pennsylvania,
according to Cheryl Ross, director of patient
advocacy for the National Kidney Foundation
of the Delaware Valley. Herself a kidney
transplant recipient, Ross says 18 people
on the transplant waiting list die each
day.
Mr. Movie has been waiting for two years;
the average wait is five years. More than
13,000 Pennsylvanians currently are suffering
through painful, life-sustaining dialysis
treatments.
The easiest way to become a donor upon
death is to check that option on your driver's
license, as I have done. Your eyes could
give sight to two blind people, your heart
could save one person, your lungs could
save two, two kidneys, one liver, large
intestine, skin... OK, I don't want to gross
you out.
About a dozen of Mr. Movie's listeners
volunteered to give him a kidney if they
were compatible.
None were, but the offers were stunning.
"What an incredibly, overwhelmingly emotional
thing that is" to have a stranger offer
an organ, Friedman said.
"But they don't consider themselves strangers
because they have been listening to me so
long on the radio."
And they will continue to hear him as he
waits for a compatible kidney.
While he waits, Mr. Movie is dying.